We've already seen about 7 different doctors. Our first appointment was very overwhelming, but it's gotten better. My mom is still here, so that has made for an easier transition, plus provided care for Riley. We are so thankful that she is able to stay with us for awhile in this season of life!
So, our pulmonologist ordered a sleep study because he wasn't convinced Andrew was breathing as well as he should be, and he wants to know exactly what is going on when he is breathing. This will take place on May 4th. Evidently this will also be beneficial information for his cranial facial doctor as well. Thursday, Andrew had another ABR since he didn't pass in the NICU. Sure enough, he needs tubes in his ears to help with the drainage so that he can hear better.... guess it's a pretty common thing for babies with cleft palates. We are trying to schedule the tube surgery in June and have them put a g button in at the same time so that his milk will go directly into his stomach. Evidently g buttons are easier to care for and will be kinder to his sweet little nose. :) These surgeries will take place if orthopedics gives us the ok. They are going to try to schedule another MRI at Texas Scottish Rite Hospital to take another look at his cervical kyphosis (the crooked place in his spine at the neck.) They are nervous about Andrew needing anesthesia for surgery because I guess it requires hyper - extending his neck. Lot's of things for the doctors to consider! Please continue to pray for healing for Andrew. Right now we are focusing our prayers on Andrew's spine and palate.
Other news: Andrew went to his first birthday party today! Our sweet friend Emery Kate turned 3. She had a princess party. Riley loved the castle bounce house, and Emery Kate's new playground. Sad we didn't take any pictures!
Also, the Lord answered our prayers to have Andrew home for Easter! We dedicated Him to the Lord on Easter Sunday with our family and our church family. We believe he is going to be a mighty warrior in the spiritual realm. May he intercede for others just as many have interceded for him! We believe the Lord will continue to display His power in and through Andrew's life! Many people who have prayed for Andrew have gotten pictures of arrows. What a great weapon for a warrior! :) It was a really special time! I don't have a picture, but Christy took some, so I'll post one later.
Our family also threw us a surprise shower later that afternoon. We felt SO loved!
The girls also got lots of Easter goodies!
Papa and Mimi built the girls a playhouse!
Andrew and Ragen
Andrew and Uncle Michael
Many of our friends from church also got together and surprised us with a special gift! A double stroller! We LOVE it!!!!
Things Andrew looks forward to every day:
dress up with his sister
getting his tube placement checked by his sister
and playing on the mat that the marable's loaned us.